Caregiving is Neither Easy nor Free

Caregiving is an emotionally and physically demanding role, requiring significant time, energy, and sacrifice. While often seen as an act of love, caregiving comes with substantial financial and personal costs that may be disruptive to daily life.
Updated: January 25th, 2025
Linda Kople

Contributor

Linda Kople

I’ve always loved the comforting ritual of coffee—the rich aroma, the warm cup in my hands, and the way it brings people together. Whether it’s catching up with friends, neighbors, or former colleagues, there’s something special about sharing stories and laughter over a cup of coffee.

Aging and our older parents always come up in conversation. Caregiving and being a caregiver is a topic that also brings tears.

Caregiving for a loved one is a labor of love—an act born of devotion, responsibility, and often deep gratitude. Yet, it's a role that is anything but simple, and it comes at an extraordinary cost, both emotional and financial. As I've seen through the intimate struggles of friends, neighbors, and even my own aging loved ones, the long-term care needs of an aging parent can ignite a family crisis, shaking the very foundations of lives, careers, and relationships.

The reality of aging is stark. Chronic illnesses, falls, mobility problems, dementia, and frailty have become an epidemic fueled by increasing longevity. While living longer is a testament to advances in medicine and public health, it often means prolonged periods of dependency and complex care needs, which many families are unprepared to handle.

Take my friend, Susan, for example. She told me that her mother, once fiercely independent, began showing signs of dementia. Susan decided to take on the role of caregiver, believing she could manage while juggling her job and her own family's needs. Within months, the physical and emotional demands overwhelmed her. Nights were sleepless, her work performance suffered, and the stress began to take a toll on her health and her marriage.

"I thought I was helping Mom and saving money," Susan told me, "but I didn't realize how much I was sacrificing."

Susan's story isn't unique. A former work colleague, Tom, attempted to care for his father after a stroke left him partially paralyzed. Tom had to cut back on work hours, which reduced his income. His wife took on more household responsibilities, creating tension at home. The emotional strain of watching his father's health decline added another layer of hardship.

Like Susan, Tom eventually realized he couldn't continue without professional help. But when they explored their options, both families faced a harsh reality: long-term care costs have skyrocketed.

Professional Care is Costly

According to the latest data from LTC News, the national average for in-home care services has climbed to over $169 a day. The base cost, before surcharges, of assisted living facilities now averages more than $55,000 annually, while nursing home care can exceed $115,000 per year, depending on the location.

For families already stretched thin, these costs can be devastating. Susan and Tom found themselves scrambling to figure out how to pay for care without depleting their parents' savings or jeopardizing their own financial futures. They also learned the hard way that Medicare doesn't cover most long-term care expenses, leaving Medicaid as an option only after exhausting personal assets.

"You don't realize how unprepared you are until you're in the middle of it," Susan said. "I wish we'd talked about this years ago."

Families are often unprepared, and the job of being a caregiver, when no plan is available, goes to what Pamela Wilson, a caregiving expert, advocate, and speaker, calls the most efficient adult child.

While it is common for the most efficient adult child to take on the majority of responsibilities, this is not a fair partnership. Adult children who accomplish more often have a high sense of control over their lives and are extremely organized. The result is that other family members rely on the "efficient one" to complete all of the tasks without offering to assist. While it appears that the efficient child caregiver makes juggling life look easy, this is not true. Significant amounts of effort and planning are contributed.

Professional Long-Term Care Makes Big Difference

While there is a cost involved, professionally trained caregivers can significantly enhance the quality of life for your older family member. Alie Johnson, CDP, who runs an Amada Senior Care franchise in the Chicago suburbs, says she feels humbled and grateful for the heartfelt feedback she receives from families. 

Dear Alie,

I just wanted to take a moment to thank you for giving my wife her peace of mind back. The past three years have been incredibly difficult with her dad's dementia and stubbornness. We truly wanted to honor his wish to stay at home, but it was becoming increasingly hard to manage.

I'm so grateful that the hospital social worker introduced us to you and encouraged us to explore his long-term care insurance. From that moment, it feels like we've gotten our lives back. My wife and I no longer argue about who's making dinner while the other checks on Dad, and we now have the reassurance that he's happy, safe, and surrounded by his new friends. Most importantly, we know he can remain at home until his final days.

Thank you so much for all your help with Dad and for guiding us through his insurance. It was truly a smart investment on his part, and we are forever appreciative of your support.

Crisis Often Starts Before Caregivers Start Helping

Johnson says she always reminds her team that most families they work with have been living in crisis long before they reach out for help.


Unfortunately, many families wait too long to ask for help, and by the time they do, relationships have suffered, living conditions have deteriorated, and the quality of life that could have been enriched for much longer has already been compromised. I wish I could connect with more families earlier to show them that even a little caregiving support can improve everyone's quality of life, protect relationships, and promote health and well-being.

Finding Quality Long-Term Care Services

Finding these caregivers can be challenging once the decision to bring in professional in-home care is made. With just a few clicks, the LTC News Caregiver Directory allows you to search for caregivers, home health agencies, adult day care centers, senior communities, assisted living, memory care, or nursing homes.

Over 80,000 long-term care providers are listed nationwide, and it is growing weekly. You can search based on the type of care and location.

Make sure to check if your loved one has a Long-Term Care Insurance policy. Many parents forget to inform their adult children or hesitate to use the benefits, fearing it might lead to nursing home placement.

The fact is most policies are comprehensive and cover all types of care, including care at home. LTC News can assist you in processing claims from any Long-Term Care Insurance policy. In partnership with Amada Senior Care, a nationally recognized in-home healthcare agency, your loved ones will receive the quality care they deserve by getting the benefits from their LTC policy quickly with the least hassle - Filing a Long-Term Care Insurance Claim.

For care providers, the LTC News Directory Business Portal offers the opportunity to claim a free listing or upgrade for enhanced visibility. 

"I am incredibly grateful when a social worker, financial advisor, or a request from LTC News introduces us to a family to explore their Long-Term Care Insurance benefits," said Johnson,

Once we help the family activate their LTC policy, they often share how it feels like they've gotten their lives back. They no longer argue about who's cooking dinner or checking on Dad because they know he's happy, safe, and surrounded by new friends. Most importantly, they have peace of mind knowing he can stay in his home until his final days.

Johnson says families frequently express gratitude for the support and recognize the Long-Term Care policy as one of the smartest purchases their loved ones made.

Planning Makes Easy

The stories of Susan, Tom, and countless others serve as a wake-up call. Caregiving is a noble endeavor, but it's one that comes with immense challenges. Recognizing the limits of what one person can do and planning for professional care can help preserve not only the caregiver's well-being but also the dignity and quality of life of the loved one in need.

Planning now when you are young and healthy will make a world of difference. Long-Term Care Insurance, for instance, can help cover the costs of professional care, alleviating the financial and emotional burdens on families. It also provides more flexibility in choosing the type of care—whether it's in-home services, an assisted living facility, or a nursing home.

Most people acquire an LTC policy between ages 47 and 67; however, experts say your health significantly impacts cost and eligibility. While most people find LTC Insurance very affordable, policies are custom-designed, and even a small LTC policy can provide substantial help when you need care decades from now.

Be sure to seek a qualified LTC Insurance specialist to help you shop and obtain accurate quotes from all the top-rate insurance companies that offer long-term care solutions.

Families must also have candid conversations about long-term care preferences before a crisis hits. Discussing finances, exploring care options, and making legal arrangements like powers of attorney and advance directives can prevent last-minute decisions made under duress.

Step 1 of 4

Find a Specialist

Get Started Today

Trusted & Verified Specialists

Work with a trusted Long-Term Care Insurance Specialist Today

  • Has substantial experience in Long-Term Care Insurance
  • A strong understanding of underwriting, policy design, and claims experience
  • Represents all or most of all the leading insurance companies

LTC News Trusted & Verified

Compare Insurers

+