Memory Cafés - Offering Caregivers and Care Recipients Connection and Support
If you don't have a loved one with dementia or are a caregiver supporting someone with dementia, you might not be aware of 'Memory Cafés.' With the growing number of people with Alzheimer's or other types of dementia, the need for support and socialization is growing. These support groups are sometimes held in actual cafés but can be in community buildings, churches, libraries, and parks. During the height of COVID-19, some groups met on Zoom calls to keep everyone healthy.
Memory cafés are community events offering a safe, supportive, and social gathering place for people with memory loss and their family and friends. They are an innovative approach to supporting those living with Alzheimer's or dementia and their caregivers.
The cafés are typically held at least once a month and include activities such as bingo, arts and crafts, singing, music therapy, educational sessions, dance, and more.
Support for Caregivers and Care Recipients
Memory cafés provide emotional, physical, and mental support for those with memory loss and their caregivers. Memory cafés are designed to provide an atmosphere where social interaction and engagement can occur, helping create a sense of inclusiveness and a sense of belonging.
Social interaction and meaningful conversation benefit those living with memory loss as it can help preserve their sense of identity and can help to improve their overall quality of life. Social interaction and meaningful conversation also help to promote feelings of happiness and reduce feelings of isolation and loneliness.
Cafés provide a relaxed, welcoming atmosphere where carers can go where they feel supported and accepted. Café attendance often brought a sense of normality to these carers' lives.
The job of a long-term care caregiver is demanding and often lonely. When you must care for a person with dementia, it is even more challenging, and many caregivers say even more lonely.
Growing Number of People with Dementia Putting Families in Crisis
An estimated 6.5 million Americans age 65 and older are living with Alzheimer's in 2022. Seventy-three percent are age 75 or older. About 1 in 9 aged 65 and older (10.7%) has Alzheimer's.
The number of people with dementia is increasing rapidly and is expected to reach 7.1 million by 2025 and 13.8 million by 2050. Persons living with dementia and their family care partners often experience detrimental social consequences, including a higher risk for loneliness and diminished social support
'Memory Cafés' offers a safe and pleasant environment with other people dealing with the same challenges. This café is a social gathering that allows individuals encountering memory loss and a family caregiver to connect, socialize, and build a support network.
Cafés Offer Socialization, Support, and Fun
These cafés are relatively new. Dr. Bere Miesen, a psychiatrist from the Netherlands, often gets credit for the idea. In the United States, the first 'Memory Café.' was in Santa Fe, N.M., in 2008. Today they have spread nationwide and worldwide. About 900 exist in the U.S. today.
Research shows that 'Memory Cafés' can be helpful for caregivers and care recipients to stay socially connected. Participants share a stronger sense of belonging. Socialization benefits the person with dementia and their family caregiver, who often get isolated and lonely.
The groups offer many activities that fit someone with cognitive impairment. The challenges of living with memory loss can sever social connections when it is most needed, and finding commonality is essential. Since those with dementia can often recall events from long ago instead of more recent memories, the groups reminisce and discuss past events and memories.
Groups attempt to have fun, which helps encourage continued participation in the group. In addition to reminiscing, groups enjoy games, inspiration, laughter, music, and snacks. The interaction between the caregivers and the care recipients helps reduce the stress and isolation that many feel when going through life with dementia or as a caregiver of a loved one with dementia.
Don't Confuse with Respite Care
Do not confuse a café with respite care. 'Memory Cafés.' are places where both the family caregiver and care recipient participate together. The benefits are equally important for both.
Respite care for the family caregiver is still vital for the caregiver's physical and mental health. Caregiving is physically and emotionally demanding. Family caregivers need a break for themselves, and there are a variety of respite care options - including adult day care - that are available.
Family Caregivers Face Challenges – Professional Care Costly
The rapid growth of 'Memory Cafés.' is an indication of the growing problem of long-term health care and the burden it places on unprepared and untrained family caregivers. Many families have not even discussed long-term care before a crisis occurs.
While many planning options are available, planning must happen before a person's health declines. Professional long-term care services are expensive and are becoming more costly every year. The growing demand for care services and longevity will continue to increase the cost and the financial strain many families must endure when advance planning is not done beforehand.
The costs of in-home care, adult day care, assisted living, memory care, and nursing homes are prohibitive more many families. When income and assets are available, adding another $5000 to $6000 a month to existing bills can exhaust assets and change lifestyles and legacies.
The cost of long-term care services does vary depending on where you live. The LTC NEWS Cost of Care Calculator shows that the base cost of assisted living in Dayton, Ohio, is averaging over $4400 a month. What happens in twenty-five years - the cost is expected the average over $8600 a month.
Compare Dayton with Amarillo, Texas, and you will see the cost of long-term health care, while still expensive, is less costly. The average cost of assisted living in Amarillo is just under $4100 a month today; in the year 2048, it should run about $7900 a month.
The LTC NEWS Cost of Care Calculator will show you the current and future costs of long-term care services of all types throughout the country. It will also provide state-specific information to help you find caregivers, facilities, and planning solutions.
Think and Plan Long-Term Care Before Retirement
Experts suggest that it is best for the entire family to start thinking about longevity and long-term health care before retirement, usually in your 40s or 50s. There are several affordable insurance solutions to consider, and a specialist can help advise you and shop from the many companies offering solutions.
Long-Term Care Insurance can provide you with the funds to pay for quality care and reduce the stress otherwise placed on family members. Specialists will match your age, health, and family history with the right insurance company to find the most affordable coverage. They will provide you with accurate quotes from all the top companies.
If you are already a caregiver or have a loved one who is declining and soon will need care, LTC NEWS can help you find quality caregivers and even assist you in processing a claim if they own a Long-Term Care Insurance policy - Filing a Long-Term Care Insurance Claim.
Family Caregivers Need Support
Meanwhile, if you have a loved one with dementia, find support in your community, and a 'Memory Café' could be helpful. Memory cafes also provide an important source of respite for family caregivers who are often struggling under the strain of caregiving. By attending memory cafes, caregivers can have a break from their routine and can have an opportunity to socialize, enjoy activities, and connect with other caregivers.
Caregivers can also receive support from memory cafe staff, volunteers, and other attendees, which can help reduce feelings of isolation and stress.